Alan’s health update 8-25-2010

Today is a milestone day for me, the 100th day since my stem-cell transplant and also the day I get discharged by Seattle Cancer Care Alliance back to my “home” oncologist at Group Health, Dr. Eric Feldman.   Susan and I feel like we’re letting go of our security blanket by leaving SCCA, but we have lots of confidence in Dr. Feldman, who has managed my care since my prior bout with cancer 10 years ago.

Yesterday we got excellent news from my attending physician.  He admitted that since both of my recent bone marrow biopsies showed no disease (using the best testing techniques currently known to science), my prognosis for a permanent remission is very good.  No guarantees, but we’re very hopeful.  I’m still at risk for episodes of chronic graft-versus-host disease, and my immune system will remain impaired for another 4 to 10 months, but those risks pale in comparison with the prospect of leukemia.

I continue to walk regularly (using trekking poles for balance) and do physical therapy exercises to rebuild my muscles, particularly in my pipe-cleaner-like legs.  Susan and I even went on our first out-of-town getaway in several months, spending a couple of gorgeous days at the Paradise Inn at Mt. Rainier.

Thanks again to all of you who have been part of our support network during these difficult months, and who continue to help out by sending encouraging emails and cards, offering rides, walks, and occasional meals now that Susan is back at work.  You all have been an integral part of my recovery, and I appreciate that more than you’ll ever know.

There are still mountains to climb!

32 Responses to Alan’s health update 8-25-2010

  1. Great news Alan!

  2. Denyse McFadden

    Alan and Susan — this is such good news and renews my faith in science, great medical care and faith! I’m thinking it’s time for you to post a photo of those pipe-cleaner-like legs, so that we can see some before and after pictures once they beef up. Keep on trekking.

  3. Great news… Let me know if you want a walking partner.

  4. Such wonderful news puts extra spring in my steps! So happy for you and your family ~ Carol and Bill

  5. Another mountain climbed indeed, onward to another!
    Love, Tom

  6. Doug & Wendy W-N

    Wendy and I personally witnessed Alan’s ascent to Myrtle Falls. Amazing. I have several friends in supposedly good health who couldn’t make the ascent to Myrtle Falls! Alan, you’re doing great and it was great to spend time with you, Susan, Barbara, and Roger last weekend.
    Doug

  7. Congrats on your amazing progress, keep up the great work.
    Love,
    Lori

  8. uncle Bernie and Aunt Martha

    Aunt Martha and I would love to be walking with you-sounds delightful-what a wonderful comeback-we realize now how prayer is so important in our lives -of course I am not knocking the wonderful science which has been so important to your recovery.
    When I started in the lab 65 years ago what is going on today was pure science fiction.
    So get back to work and start living that good life.
    Love from us to all of you

  9. This is the best update yet! I’m so glad you were able to enjoy some days at Mount Rainier, too! It’s a favorite place!

    Wishing you continued strength, Leslie

  10. So happy to hear about your continued progress! Truly something to celebrate. Best to you and Susan. Thanks for checking in with us recently, too. Great to hear from you! -Becky & Drew

  11. What a challenge it’s been for you and Susan! Best wishes for your continued recovery.

    And thanks for your private e-mail to me–it takes a survivor to know a survivor!

    Joan

  12. Jerry Liebermann

    Congratulations!!! It looks as though you too are one of those miracle people.

    Love, Jerry & Linda

  13. Continued great news Alan! Congratulations.

  14. Sandy and Larry

    Love the great news, and wish we could just drive over for a walk with you and Sue- maybe in this coming year- Keep up the great attitude and we can’t wait to hear the next round of good news, hugs to the boys too,

  15. That 100 day milestone is so amazing and I know what a relief you feel to start on the next path with your own Dr. Mt. Rainier was a wonderful outing and great to be one with nature. Keep up the good work Alan and Susan.

  16. Mazel Tov!
    Many many more 100′s to come…all healthy.
    So impressed that you look for ways to really get OUT and ABOUT.
    Happy to keep on helping in any way we can.
    Love to both of you.
    Brenna and Bill

  17. Climb every mountain…. Ford every stream (Mother Superior). Alan you have been and continue to be a shining example of perseverence and maintaining a positive attitude throughout your significant challenges. Who cares about Mike …. I wanna be like Al! Congratulations, and all our love, Mark and Mary.

  18. I’m at mom’s condo tonight and we just read your latest entry together — plus all the great comments. Mark and Mary stole our great song lyric. 100 days is such a journey and we remain thankful for every bit of good health news. We are so proud of you and Sue! See you on Sunday at the lake. Would live to see more pics of your Paradise get-away! Love to you from Beth and Mavis

  19. You and your family amaze me! When I think of how this experience has affected all of you… Well, it’s truly emotional. The Schulkins (and Schulkins by proxy) are an inspiring group.

  20. This is such wonderful news. Next time you hear someone say attitude doesn’t make a difference, you tell them about Alan and Susan….

  21. Ethan Patashnik

    GREAT news – you’ll have two miracles to celebrate this Chanukah!!

  22. Alan and Susan,
    The best possible news and just in time for the New Year.
    Lots of love and continued progress……………Lori

  23. I am thrilled to hear the great news about your health. I am sure your positive attitude, emotional and physical strength, and the amazing support of your family and friends helped to get you where you are. I look forward to more positive news in the New Year. Shalom.

  24. Ruth Rolander Cernera

    Wonderful news, Alan! What a treat to see you at the Lake, the highlight of my trip out West. All our love to you and Sue, xo xo Ruth et al

  25. This is great news. Wonderful to hear great progress!

  26. We have been rejoicing with every receipt of positive news. Your 100 day milestone is truly worth celebrating. You and Susan are near and dear to our hearts. Shanah Tovah.
    Joan and Jerry

  27. Sweet news indeed. And in time for the New Year. May it be one full of good health and family and friends. You are amazing and an inspiration to us all.
    love,
    Charlene and Sam

  28. Such great news, such a long climb.

  29. Standing ovation for you from across the street!!!!

  30. Dear Alan,
    I am so pleased and thrilled to hear that your treatment has gone well and that you posted such a great picture of you and Susan up at Mt. Rainier! If you are still in need of driving, I could help on some Mondays and Fridays.
    You are such an inspiration!
    Sandy

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